stories
Most of our stories are from children or young people living with Crohn's disease or Ulcerative collitis, or those who were diagnosed as a child, or their families. We are really grateful to them all for sharing their experience to help others feel less alone and hopeful for the future.
Telling your story can be really helpful for others, and give useful insights to everyone about what living with inflammatory bowel diseases (IBD) like Crohn's and colitis is really like for children and young people, and their families.
William
William spoke at one of our family days about living with Crohn's disease and the treatments he has had.
Eliza
Jayne's daughter Eliza was diagnosed with Ulcerative colitis aged 13. After surgery when she was 15, Eliza asked her doctors if she would be able to have children and was told 'probably not' because of extensive scarring.
Luke
Luke was diagnosed with Ulcerative colitis at 16. Soon after he was given the opportunity of a school trip to Kenya with the charity 'Classrooms for Kenya'.
Liam: technology and uni
Liam, 22, was diagnosed with Ulcerative colitis in the middle of his second year at uni but is now back on track thanks to a supportive consultant, new technology, and being open about his condition
Hannah
Hannah Sewell is 16 and is being treated for Crohn’s disease, and writes about growing up with IBD and how she overcame some of the challenges.