A diagnosis of IBD can be a knockout punch for children and their families. All too often, it’s a disease they know nothing about and, in many cases, had previously never heard of CICRA provides trusted information and a reliable source of support that many families describe as a lifeline.
We provide support and information for children and families by:
- providing easy to understand booklets and leaflets for parents, teachers and young people with IBD
- offering ‘can’t wait’ cards - we issue cards (free of charge) for children to help explain the condition when in urgent need of toilet facilities
- running an epal scheme for children and young people to chat and support each other by email
- organising at least three family information days each year - offering families the opportunity to meet members of the medical profession and other families in a similar situation
- providing FREE membership
- offering telephone support, so parents are able to talk to someone who understands
- keeping families up to date and informed on research
- producing and sending a newsletter twice a year, free of charge, to families
- providing up-to-date information on our website
- raising public understanding of IBD in children and young people
- working closely with paediatric IBD specialist nurses at paediatric gastroenterology centres, specialist units and district general hospitals across the UK
In 2016, family information days were held in Cardiff, Manchester and Cambridge. In 2017, meetings took place in Edinburgh, London and Birmingham. In 2018, meetings have been held in Bristol and Sheffield, Leicester is coming up on 7 July and there will be more before the end of the year.