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  • What is IBD?

    Crohn’s Disease and Ulcerative Colitis are two of the most important diseases in a group of illnesses known collectively as Inflammatory Bowel Disease (IBD).

    Although they are different diseases, they are difficult to tell apart, and indeed are often treated in a similar manner. When there is definite evidence of chronic inflammation but it is not possible, at least at first, to decide whether it is Crohn’s Disease or Ulcerative Colitis it is referred to as Indeterminate Colitis or IBD Unclassified (IBDU) and in rare cases may remain ‘indeterminate/unclassified’ for a considerable length of time.

    Crohn’s Disease is characterised by inflammation of one or more areas of the digestive tract with normal areas of gut between, and can occur anywhere from the mouth to the anus but most commonly in the large and small intestine. This inflammation may lead to ulceration, abcesses and strictures in the bowel. Additionally, Oral Crohn’s affecting the mouth and lips is being seen frequently in children. There may also be inflammation of the joints, skin and eyes.

    Ulcerative Colitis is characterised by inflammation, causing severe ulceration and bleeding, but it only affects the large intestine. As with Crohn’s Disease there may also be inflammation of the joints, skin and eyes.

    Both conditions are chronic (long lasting) and seriously affect a child or young person’s ability to carry on with regular activities. They should not be confused with irritable bowel syndrome (IBS), an unrelated condition.

    Inflammatory Bowel Disease prevalence in children and young people is increasing, and research has not yet been able to understand exactly why.

    Severity of the illness varies between individuals, some suffer constantly while others have long periods in remission (reduction in severity of the condition).

    Symptoms can include constant abdominal pain, loss of blood, vomiting, fever, diarrhoea (to the point of incontinence) or constipation,  loss of appetite leading to malnutrition, weight loss and severe lethargy.

    Treatment is tailored to suit each patient. In some cases a special liquid feed or less powerful drugs may bring about a remission but often large doses of steroids or some of the newer biological drugs become necessary.  Sometimes  surgery is needed to remove the diseased area but this is not a cure in Crohn’s Disease but can be so in Ulcerative Colitis.    A resection, where a small part of the bowel is taken out and the ends joined together, may be all that is needed,  or in the worse case the bowel is removed and  an opening made on the surface of the stomach with a bag fitted to collect body waste (ileostomy).   Sometimes an ileostomy can be formed  to rest the bowel and reversed at a later date.  In some cases of Ulcerative Colitis an internal pouch can be formed.   Keyhole surgery is now bringing a new dimension to bowel surgery.

    At present there is no known cause or cure for IBD (other than removing the whole large bowel in patients with Ulcerative Colitis) but research is producing much more effective treatments.

    Read our recent article on Early Onset Inflammatory Bowel Disease


    Download  Parents guide – children with crohns and colitis (pdf)