email support groups

Sometimes we all need a bit of help and it’s good to talk, especially to someone who knows how we feel. Here are three ways to connect with others dealing with IBD - just pop an email to for more information, or contact us.

Very Early Onset IBD (VEOIBD) for parents with children under 9 years old

The challenges facing parents with younger children can be very different to those with teenagers: weaning, potty training, nursery, starting school, medication and how to explain the condition can all be daunting. Sharing your thoughts, questions and tips with other parents in a similar situation can be beneficial and reassuring.

> get in touch if you are a parent of a child under 9, diagnosed with any form of inflammatory bowel disease (IBD)

Stoma and J-Pouch for parents and children/teenagers

Surgery can be daunting for both children and parents. Practical tips and advice from someone who has ‘been there’ can be useful when recovering from surgery and coping with the practicalities of a stoma or pouch. Chatting to someone who knows how you feel can be reassuring and positive. If you have a stoma or J-Pouch (or your child has) and you are happy to support other people, please get in touch. If your child is facing surgery and you would like support from other families, we can help.

> get in touch if you are a parent of a child with a stoma or J-pouch or your child is facing surgery and you want to know more

E-Pals, for children and teenagers with Crohn’s, colitis or IBDU (age 8-22 years)

Children with IBD can often feel isolated and alone. The nature of the condition means they miss a lot of school, and friends just don’t understand how they feel. The support of someone their own age, in a similar situation can be surprisingly positive and valuable. The E-pals are children and teenagers with Crohn’s, colitis or IBDU who chat and share experiences by e-mail. It doesn’t matter if the children are newly diagnosed or had the condition for some time, chatting to someone who understands can be supportive and fun!

> read more about current E-Pals on our website, including how to sign up

Being part of the E-pals means a lot to me because it enables me to chat with other young people who are going through the same thing as me.
Katy who has Ulcerative colitis

Join or find out more

If you would like to join or find out more about our email support groups, please contact Jayne on or call the office on 020 8949 6209

contact us