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  • Useful Links

    UK Organisations

    Contact a Family
    Dedicated to families with disabled children or those with special conditions
    209-211 City Road LONDON EC1V 1JN or visit www.cafamily.org.uk

    Coeliac UK
    The organisation for people of all ages with coeliac disease www.coeliac.co.uk

    NASPCS
    National Advisory Service for Parents of Children with a stoma.
    51 Anderson Drive, Darvel, Ayrshire, KA17 0DE

    PINNT
    The organisation for patients with intravenous and nasogastric nutrition therapy, their support and information site for patients and the medical profressional is www.acc.org.uk

    Crohns and Colitis UK (The National Association for Colitis and Crohn’s Disease)
    4 Beaumont House Sutton Road ST ALBANS Hertfordshire AL1 5HH
    Tel: 01727 830038 Information Line Tel: 01727 862550 or visit www.nacc.org.uk

    NICE

    The National Institute for Health and Care Excellence (NICE) is an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health. www.nice.org.uk

    NICE has the following specific links which may also be of interest:

    October 2012:  Clinical guideline CG152 Crohn’s disease: Management in adults, children and young people.

    June 2013:  Clinical guideline CG166 Ulcerative colitis:  Management in adults, children and young people

    February 2015: Quality Standard ( QS 81)  Inflammatory bowel disease

    February 2015:  Infliximab, adalimumab and golimumab for treating moderately to severely active ulcerative colitis after the failure of conventional therapy (including a review of TA140 and TA262) Technology Appraisal Guidance TA 329.

    Available at: www.nice.org.uk/guidance/ta329/informationforpublic

    In addition an under development clinical guideline: Transition from children’s to adult services is due to be published by NICE in February 2016

    International Organisations

    EFCCA
    European Federation of Crohns and Ulcerative Colitis Associations. A Europe-wide “umbrella” of 26 national associations for patients with Crohns and Colitis. A number of country specific downloadable “travelling” factsheets are available from the site. Foreign language versions may also be available from the home country.

    See also the linked site www.lifeandibd.org where modular information about IBD (inflammatory bowl disease) covering different age groups are available in the English language and a number of foreign languages.

    CCFA
    Crohns and Colitis Foundation of America www.ccfa.org

    CCA
    Crohns and Colitis Australia www.crohnsandcolitis.com.au

    CCFC
    Crohns and Colitis Foundaiton of Canada www.ccfc.org

    Crohns and Colitis New Zealand
     www.crohnsandcolitis.org.nz