• Susanna is 10 years old and suffers from Indeterminate Colitis, she recently wrote this poem.

    IBD makes me feel rotten

    If it wasn’t’ for memories I would have forgotten the healthy little girl I used to be.

    Who skipped, ran and danced all day long, who was sure and went anywhere without a doubt.

    Who ran like a deer and who was well and never ill.


    No one would recognise me now – except for my looks.

    For now I am mature, much more that I would be without IBD.

    Not as healthy as I used to be, but a better me.

    Me, yes, me, has been so ill that the word ‘surgery’ was mentioned.

    I am scared and not so sure and confident, more shy.

    Won’t go anywhere without being super sure and safe.

    Who is not as active as I used to be, but is mature, able, understanding, reliable and much more.


    Although I don’t like IBD.

    Now I have got used to it, I wouldn’t change it for the world, for it is part of me.

    And if I didn’t have it I wouldn’t be me!