• E-Pals

    If you are looking to make new friends and would like to talk to someone who understands what you are going through, then why not try our E-Pal Scheme.

    Below is a list of current E-Pals and their details. If you would like to have contact with any of them by email, please contact us at support@cicra.org with the name & number of the E-Pals you have chosen and we will forward your email address on to them, asking them to make contact with you.

    List regularly updated

     

    Amy – 3909

    Hi, I’m Amy and I am 15 years old. I was diagnosed with Crohn’s Disease in September 2017. I am about to start Infliximab and have recently been on a 6-week diet of Modulen. I enjoy reading, dinging, dance, shopping and listening to music. I am doing my GCSE’s this year and have already missed a lot of school. I would really like to talk to people going through similar things to me.

    Jodi – 3893

    My name is Jodi and I am 15. I have just recently been diagnosed with Crohn’s Colitis. I have been on Modulen for 6 weeks and I am now on Azathioprine and starting Infliximab infusions soon. I really enjoy art and fashion and I am doing Art and Textiles as GCSE’s! I also have been dancing since I was really young. I would like to chat to other teenagers who are going through a similar experience.

    Libby – 3627

    Hello, my name is Libby and I am 13 years old. I was diagnosed with Crohn’s when I was nearly 12 years old. I would like to hear from people around my age who understand what I’m going through. I enjoy dancing, Tae Kwon Do and love looking after animals especially our dog.

    Aaron-Vyas – 3857

    Hi, my name is Aaron-Vyas and I am 10 years old. I was diagnosed with Ulcerative Colitis in June 2017. At the moment, I am taking Azathioprine tablets and Mesalazine. I like playing on my Xbox, reading fiction booking and watching YouTube videos. My favourite sport is football and I play for my school’s football team. My two most favourite subjects in school are maths and computing. I would love to talk to someone who is in the same situation as me.

    Harrison – 3897

    Hi, I am Harrison and I am 7 years old, I have just been diagnosed with Crohn’s. I love playing my Xbox and I-pad and really like swimming. I would really like a pen pal.

    Sophie – 3710

    My name is Sophie and I am 11 years old. I was diagnosed with Crohn’s disease in September 2015 and went onto a liquid diet for 6 weeks and Azathioprine. I am now on Infliximab and Methotrexate. My interests are dancing and spending time with my friends. I would like to chat to you by e-mail and share experiences of what it’s like to have Crohn’s. I hope you will want to write to me.

    Katy – 1582

    My name is Katy and I am 18 years old. I was diagnosed with Ulcerative Colitis when I was 8 years old. I am currently taking a gap year before studying English Literature at university. I enjoy reading, running and shopping.

    Thomas – 3837

    Hello, my name is Tom. I’m 14 years old and I have been diagnosed with Crohn’s. I have had an emergency operation and now have a fistula. I am waiting to see what medication I will be given! I’d love to speak to anyone with a similar experience. I’m a huge film fan, especially the Marvel films.

    Maisie – 3412

    I was 12 when I was diagnosed with Crohn’s Disease (I am now 15). It was the 27th May 2015 when I got the news after an endoscopy and colonoscopy. I was really thin and looked ill. After I got diagnosed I was on Modulen for 6 weeks which unfortunately didn’t work. I had to stay in Southampton Hospital for 3 days after I got diagnosed. After Modulen I was put on steroids and my face was very chubby! Fortunately, the steroids worked. I feel much better now and am on azathioprine, Senna and vitamin D spray.

    Lydia – 3027

    Hi, my name is Lydia and I’m 18 years old and have Ulcerative Colitis.  I love animals and acting and cuddling up with my dog Jodie.

    Luis – 3761

    Hi, my name is Luis, I am 9 years old and was diagnosed with UC in October 2016. I am currently taking Humira. I love horse riding, athletics, my dog Pete and play station. I would love to hear what other people think about UC and how to deal with it.

    Emma – 3733

    I’m Emma and I’m 15 years old. I was diagnosed with Crohn’s disease in August 2016 at the age of 14 after experiencing symptoms for 3 years. I was on a 6 week Modulen diet which didn’t heal my inflammation so I then went on prednisolone steroids. I now take azathioprine, adcal and Omeprazole. I enjoy baking, sport and watching films. I would love to talk to people who understand the difficulties with crohns and struggles with school.

    Jess – 3791

    Hi, my name is Jess and I am 16 years old. I was diagnosed with Proctitis is March 2016. I was on different types of medication for 3 months until I went on an 8-week course of Prednisolone. Luckily, after that course of medication I am in remission and thankfully have been for 7 months. I am determined to prove you can have a life and achieve after you have been diagnosed with IBD.

    Thomas – 3654

    Hi, I’m Thomas and I was diagnosed with Crohn’s Disease in September 2016.  I am 9 years old. I have done a liquid only diet for 6 weeks but I am now eating normally. I like playing on my Xbox, riding my BMX bike and scooters.  I would like to hear from anyone who would like to be my friend.

    Amy – 3594

    Hi, my name is Amy, I am 15 and was diagnosed with Crohn’s in April 2016. My interests are art, music and sports. It would be nice to talk to people who understand what it’s like and what I’m going through.

    Mollie – 3463

    My names Mollie Pearce I am 16 in January and taking my GCSEs this school year. I have had severe ulcerative colitis since I was 11 years old and have had lots of treatments of the year but have no yet needed an operation. I’d be happy to talk to anyone going through similar things!

    Natalia – 3341

    Hi, my name is Natalia and I am 19 years old. I have Crohn’s Disease and despite being on the top tier of medications I am struggling and am a long way off going into remission. I am passionate about rowing and hope to resume this sport once I am feeling better, I also love reading and listening to music.

    Willow – 3330

    Hi, my name is Willow and I am 12 years’ old and I was diagnosed with Indeterminate Colitis when I was 6. I like acting, art and I also go to Scouts. My medications now are Azathioprine and Mesalazine. I am home educated and have a twin brother and 2 other sisters’ and I would love to hear from anyone who would like to write to me!

    Verdah – 3825

    Hi, I’m Verdah and I was 14 when I was diagnosed with Crohn’s Disease in 2015.  I am now 16 years old and taking Adalimumab injections every other week and am taking Modulen 6 times a day.  Also, this year I took my GCSE’s which stressed me out so much, I had weekly visits to the hospital because I was so ill. Now I’m starting to prepare for my A-levels. I would love to help and talk to anyone experiencing a similar situation.

    Brooke – 3698

    My name is Brooke and I am 15 years old.  I was diagnosed with Ulcerative Colitis, coeliac disease and irritable bowel syndrome in November 2016.  I am currently taking Balsalazide, Buscopan, Azathioprine, Allopurinol and Amitriptyline.  I have a gorgeous fox red Labrador called Rico and I love him to pieces.  I really like listening to music (especially the vamps) and I love to draw. One of my favourite things is going to concerts, I go to a lot of them. I’d love to talk to anyone but particularly if anyone else is worrying about tests coming up and missing a lot of school, as well as anyone who is finding it difficult to cope with the changes in lifestyle. I also struggle with that.

    Anna – 3299

    Hi, I’m Anna and I’m 16 years old (year 12).  I was diagnosed with IBDU (this means they don’t know if it is Crohns or Colitis) in October 2014.  I love to sing and I like to meet up with friends. I am studying for A Levels in Business, Art and Health and Social Care. I missed a lot of school in years 10 & 11 and had to take my GCSE’s at home. I live in Surrey and am on Infliximab every 5 weeks currently.  I would love to talk to anyone who has similar worries to me.

    Ella – 3829

    Hi, I’m Ella and I’m 15 years old, I was diagnosed with Crohn’s in May 2017. I have a Border-Jack called Ted and my favourite subjects at school are art and textiles. I also love watching YouTube videos and reading. I am studying for my GCSE’s although I have missed a lot of school. I would love to talk to someone who shares my interests and worries.

    Hannah – 2949

    ‘Hi, I’m Hannah, I’m 18 years old and was diagnosed with IBD when I was 13. Last June I completed my A levels and I’ve now got myself a job working part time in retail. I’m taking a few courses to become a qualified nail technician. I’m happy to talk to anyone who wants a chat or some support.

    Tami – 3664

    Hi, I’m Tami and I’m 14 years old. I was diagnosed with Crohns in June 2016 and have been on a number of different medications since then, including Azathioprine, Modulen, steroids and am currently on Humira (adalimumab). I have two dogs and volunteer at a dog groomers. I also have a hamster and I giant African land snail. I love playing cricket and hockey and would like to talk to new people.

    Amelia – 3746

    My name is Amelia, I am 12 years old (Yr. 8) and I was diagnosed with Crohn’s Disease in October 2016. I have had Modulen through an NG tube for 3 months and am currently on some Modulen, Pentasa, Azathioprine and Prednisolone. I play for my local table tennis team, I do scouts and I enjoy reading and art. I also play the piano to relax. It would be good to chat to people similar to me and would like to make new friends. I am also happy to help others with their questions as well.

    Amy – 3717

    Hi, my name is Amy and I am 10 years old, nearly 11 (Year 6).  I was diagnosed with Ulcerative Colitis in January 2017 and I am currently on Mesalazine, which I take twice a day.  I play for a girl’s football team (U11s), and partake in netball and dodgeball. I love being on my phone and talking with my friends.  I also love maths.  I would love to talk to someone about my experiences of what I went through and maybe we can become friends.

    Niamh – 2983

    Hi, I’m Niamh and I am 18 years old, I was diagnosed with Ulcerative Colitis in November 2011, but now diagnosed as Indeterminate Colitis.   I was home tutored until recently due to chronic fatigue and am now at 6th form (year 14) studying A Level Psychology and Financial Studies having already completed and gained A levels in English Literature and Business.  My hobbies are reading, art, drawing, and painting, watching films and listening to music.  I have recently passed my driving test and enjoy the independence it’s given me.  We have adopted two retired greyhounds called Choco and Biggles.

    Natasha – 3569

    Hi, my name is Natasha and I am 13 years old.  My hobbies are dancing, performing and acting.  I was diagnosed with Crohn’s Disease in November 2015. I find it really helpful talking to people about what I go through and supporting others and making new friends.

    Wendy – 2451

    Hi, I’m Wendy and I’m 17. I was diagnosed with Crohn’s at the age of 10 and have had Modulen 3 times so far. I’m currently in sixth form studying maths, english and psychology. My main interests are art, running, gaming and YouTube. I’m happy to talk to anyone and make new friends.

    For your child’s safety, parents are urged to follow government advice with regard to the use of the internet, and to carefully monitor any correspondence made through e-mail, chatrooms and the like.

    When we receive a request to put a child in touch with another we will send a copy of the initial email to the parents e-mail address so they are aware who their children are contacting.

    Please note that CICRA cannot accept any responsibility for any unsuitable or undesirable contacts made through this column.