• E-Pals

    If you are looking to make new friends and would like to talk to someone who understands what you are going through, then why not try our E-Pal Scheme.

    Below is a list of current E-Pals and their details. If you would like to have contact with any of them by email, please contact us at support@cicra.org with the name & number of the E-Pals you have chosen and we will forward your email address on to them, asking them to make contact with you.

    List regularly updated

    Thomas – 3837

    Hello my name is Tom. I’m 14 years old and I have been diagnosed with Crohn’s. I have had an emergency operation and now have a fistula. I am waiting to see what medication I will be given! I’d love to speak to anyone with a similar experience. I’m a huge film fan, especially the Marvel films.

    Ella – 3829

    Hi, I’m Ella and I’m 15 years old, I was diagnosed with Crohn’s in May 2017. I am currently on the 6-weeks liquid diet. I have a Border-Jack called Ted and my favourite subjects at school are art and textiles. I also love playing on my Xbox One, watching YouTube videos and reading. I am doing my mock GCSE’s although I have missed a lot of school. I would love to talk to someone who shares my interests and worries.

    Verdah – 3825

    Hi, I’m Verdah and I was 14 when I was diagnosed with Crohn’s Disease in 2015. I am now 16 years old and on 6 weekly Infliximab infusions and am taking Modulen 6 times a day. Also, this year I took my GCSE’s which stressed me out so much, I had weekly visits to the hospital because I was so ill. I would love to help and talk to anyone experiencing a similar situation.

    Aidan – 3818

    My name is Aidan and I was diagnosed with Ulcerative Colitis on my 8th birthday. I take Asacol tablets. I like playing on gadgets, going to cubs and judo and reading Tom Gates books.

    Maisie – 3412

    I was 12 when I was diagnosed with Crohn’s Disease (I am now 14). It was the 27th May 2015 when I got the news after an endoscopy and colonoscopy. I was really thin and looked ill. After I got diagnosed I was on Modulen for 6 weeks which unfortunately didn’t work. I had to stay in Southampton Hospital for 3 days after I got diagnosed. After Modulen I was put on steroids and my face was very chubby! Fortunately, the steroids worked. I feel much better now and am on azathioprine, senna and vitamin D spray.

    Jess – 3791

    Hi, my name is Jess and I am 16 years old. I was diagnosed with Proctitis is March 2016. I was on different types of medication for 3 months until I went on an 8-week course of Prednisolone. Luckily, after that course of medication I am in remission and thankfully have been for 7 months. I am determined to prove you can have a life and achieve after you have been diagnosed with IBD.

    Luis – 3761

    Hi, my name is Luis, I am 9 years old and was diagnosed with UC in October 2016. I am currently taking Mesalazine, Azathioprine and am having Infliximab infusions. I love horse riding, athletics, my dog Pete and play station. I would love to hear what other people think about UC and how to deal with it.

    Amelia – 3746

    Hi, my name is Amelia and I am 12 years old. I was diagnosed with Crohn’s Disease in October 2016. I had Modulen through an NG tube for 3 months and am currently on Pentasa. I do Scouts, enjoy reading, writing, art and I play the piano. I would really like to talk to someone who has been through or is going through a similar situation as I am and it would be good to have a friend who understands what it’s like to have IBD.

    Emma – 3733

    Hi, I’m Emma and I’m 15 years old. I was diagnosed in August 2016 with Crohn’s disease at the age of 14. I was on a 6-week diet of Modulen then my inflammation became worse so I am now taking prednisolone as well as vitamin d tablets. I take Azathioprine every day and may have to start infliximab soon. I enjoy sport, baking and talking with friends but would love someone to talk to who understands or struggles with school.

    Amy – 3717

    Hi, my name is Amy and I am 9 years old, nearly 10 (Year 5). I was diagnosed with Ulcerative Colitis in January 2017. I play for a girl’s football team and I love going on my phone and talking with my friends. I also love maths. I would love to talk to someone about what I’m going through and maybe we can become friends.

    William – 3713

    My name is William and I am 12 years old. I enjoy cycling. I also like music and play the trumpet and drums. I really enjoy travelling, especially to New Zealand, because my mum is from there.  I have Crohn’s. I’d like to have a e pal to chat to about it.

    Sam – 3667

    Hello, my name is Sam and I am 6 years old. I was diagnosed with Ulcerative Colitis in September 2016. I would love to have a pen pal. I love playing football, building lego – especially Nexo Knights, anything to do with Star Wars and remote controlled cars.

    Brooke – 3698

    My name is Brooke and I am 14 years old. I was diagnosed with Ulcerative Colitis, coeliac disease and anaemia in November 2016. I am currently taking Prednisolone, Balsalazide, Omeprazole and Vitamin D alternate days. I have a gorgeous fox red Labrador called Rico and I love him to pieces. I really like listening to music and art. I’d love to talk to anyone but particularly if anyone else is worrying about tests coming up and missing a lot of school.

    Rosanna – 3577

    My name is Rosanna, I’m 12 years old and have Colitis which was diagnosed in August 2015.  I am currently taking Mesalazine and Azathioprine.  I have a dog called Caspar, he is a Cavalier King Charles Spaniel and is quite inactive but very adorable.  I used to go to a swimming club and loved it but stopped when I got ill, I hope to get back to it soon.  I also like computer gaming such as Minecraft PC and agar.io.

    Thomas – 3654

    Hi, I’m Thomas and I was diagnosed with Crohn’s Disease in September 2016.  I am 9 years old.  I have done a liquid only diet for 6 weeks but I am now eating normally. I like playing on my Xbox, riding my BMX bike and scooters.  I would like to hear from anyone who would like to be my friend.

    Megan – 3396

    My name is Megan and I am 17 years old. I was diagnosed with Crohn’s disease at 12 and have been on Ipocol and Modulen but since 2015 have had to go to a high dosage of prednisolone twice. I am now on infliximab infusions and I would really like to speak to someone who is on infliximab and am here to help or support anyone who is currently on or about to start on any medication I have previously been on. I am in 6th form taking a musical theatre diploma course and have trained in singing, dancing and acting at theatre schools from the age of 9.

    Natalia – 3341

    Hi, my name is Natalia and I am 18 years old. I have Crohn’s Disease and despite being on the top tier of medications I am struggling and am a long way off going into remission. I am passionate about rowing and hope to resume this sport once I am feeling better, I also love reading and listening to music.

    Tami – 3664

    Hi, I’m Tami and I’m 13 years old.  I was diagnosed with Crohn’s in June 2016 and have been on a Modulen diet twice since then, I am currently on Prednisolone and starting Azathioprine soon.  I love dogs and have two of my own (Millie & Poppy).  I enjoy volunteering at a local dog groomers, sports such as kickboxing, hockey and cricket.  I like studying science at school.  I would love to talk to new people and make new friends J

    Niamh – 2983

    Hi, I’m Niamh and I am 17 years old, I was diagnosed with Ulcerative Colitis in November 2011.  I was home tutored until recently due to chronic fatigue and am now at 6th form studying English Literature, Psychology and Financial Studies.  My hobbies are reading, art, drawing, and painting, watching films and listening to music.  We have adopted two retired greyhounds called Choco and Biggles.

    James – 3269

    Hi, I’m James and I am 12 years old.  I was diagnosed with Crohn’s Disease and Juvenile Arthritis in November 2014 and am on Methotrexate.  I like music and play the guitar, violin and piano.  I also love sports such as football, cycling, running, target shooting and swimming.  I especially love computer games and have a Wii, Xbox and like to play on the PC. I am planning on building my own gaming PC out of various components I am getting for Christmas from generous parents, grandparents and godparents this year. I would like to be in touch with people who know what I am going through.

    Lucy – 3159

    Hi my name is lucy I am 18 years old and I was diagnosed with Crohns disease at the age of 12. I am a care assistant in a care home with dementia. My medications are azathioprine, octasa, vitamins and iron tablets. My interests are baking, watching Jeremy Kyle, my animals and family guy.

    Elliott – 3590

    Hi, I’m Elliott and I’m 14.  In January of this year I had an abscess, then fistula’s and after 4 operations was diagnosed with Crohn’s.  I’ve been on Modulen for 6 weeks (tough) and now started infliximab.  I’m a bit Anime fan, I also love to read and write and am reading Manga at the mo.  In my spare time I like to play games like Team Fortress.  I am more than happy to e-mail anyone who wants to e-mail me!

    Lydia – 3027

    Hi, my name is Lydia and I’m 17 years old and have Ulcerative Colitis.  I love animals and acting and cuddling up with my dog Jodie.

    Amy – 3594

    Hi my name is Amy, I am 14 and was diagnosed with Crohn’s in April 2016. My interests are art, music and sports. It would be nice to talk to people who understand what it’s like and what I’m going through.

    Hannah – 2949

    Hi I’m Hannah, I’m 17 and currently in year 13 doing my A levels. I enjoy the arts such as singing, dancing and acting and also love writing songs. I hope to go onto university and do a psychology degree to work towards becoming a psychotherapist.

    Connor – 3651

    Hi, my name is Connor and I am 8 years old. I was diagnosed with UC in 2014. I like NERF, playing on a tablet, going on my scooter or bike, playing with my remote control cars and Hornby train set. I am on steroids, azathioprine, Mesalazine and omeprazole and have just had a blood transfusion. I would love to hear from anyone.

    Wendy – 2451

    Hi, I’m Wendy and I’m 17. I was diagnosed with Crohn’s at the age of 10 and have had Modulen 3 times so far. I’m currently in sixth form studying maths, english and psychology. My main interests are art, running, gaming and YouTube. I’m happy to talk to anyone and make new friends!

    Peter – 3028

    I am 12 years old and was diagnosed with Crohn’s disease in January 2013. In May 2016 I had surgery and now have a permanent stoma. I like rock and roll music, playing guitar and learning to play the bagpipes. I also like to read. I would like to talk to people who know what I am going through.

    Mollie – 3463

    Hi, my name is Mollie and I am 14 years old. I was diagnosed with Ulcerative Colitis in June 2013, since coming out of hospital I have had 4 flare ups. I love sport and being with my friends. It would be great to talk to anyone going through the same.

    Natasha – 3569

    Hi, my name is Natasha and I am 12 years old. My hobbies are dancing, performing and acting. I was diagnosed with Crohn’s Disease in November 2015.

    Anna – 3299

    Hi, I’m Anna and I’m 15 years old (year 11).  I was diagnosed with IBDU (this means they don’t know if it is Crohns or Colitis) in October 2014.  I love to sing and I like to meet up with friends. At the moment I am getting ready for my GCSE’s but I have missed a lot of school! I live in Surrey and am on Infliximab.  I would love to talk to anyone who has similar worries to me.

    Ankita – 3632

    Hi I’m Ankita, I am 10 years old. I was diagnosed with Crohns disease in May 2016. I love reading, story writing, maths, art and acting.  I have Wii U and play Mario Cart, Yoshi’s Wolly World, Sonic and Mario’s Olympics. I also love playing Pokémon Go, collecting Pokémon cards and watching the Pokémon series. I will be moving to secondary school in September 2017. I would enjoy having an E-pal to discuss our medical problems and to share common interests.

    Madeline – 3695

    Hi I’m Madeline and I am 12 years old and have Ulcerative Colitis. I am on Azathioprine, Sulfasalazine and Infliximab. I like going on my phone, shopping, organising my room and hanging out with friends and family. I would love to chat to someone who knows what I am going through and hope we can become friends.

    Katy – 1582

    My name is Katy and I am 17 years old. I was diagnosed with ulcerative colitis when I was 8 years old. I am currently studying for a-levels doing English literature, history, philosophy & ethics and sociology. I enjoy reading, running, shopping and cooking.

    Willow – 3330

    Hi, I am 11 years’ old and I was diagnosed with Indeterminate Colitis when I was 6. My hobbies are acting, dancing and I also do Scouts. I like listening to music and sometimes making stories with them. My medications now are Azathioprine and Mesalazine. I am home educated and have a twin brother and 2 other sisters’ and would like to hear from anyone who would like to write to me!

    Hafsa – 3142

    Hi, my name is Hafsa and I am 14 years old. I have been diagnosed with Crohn’s Disease since I was 9 and I may have a possible sclerosing cholangitis in my liver. My hobbies are reading, Jujitsu, baking, and gardening. I would like to talk to someone who understands what I’m going through and is in a similar situation.

     

    For your child’s safety, parents are urged to follow government advice with regard to the use of the internet, and to carefully monitor any correspondence made through e-mail, chatrooms and the like.

    When we receive a request to put a child in touch with another we will send a copy of the initial email to the parents e-mail address so they are aware who their children are contacting.

    Please note that CICRA cannot accept any responsibility for any unsuitable or undesirable contacts made through this column.