Amy Louise Grime has kindly agreed that we can share with you her journey with Crohn’s disease.
Amy was diagnosed with Crohn’s aged 9, after suffering un-diagnosed for 2+yrs. She felt alone with no one really understanding her condition. Amy had her first surgery for Crohn’s aged 10 and subsequently also had an ileostomy.
Amy tried and failed with all medications, endured 27+ operations, permanent IV feeding (TPN), and had multiple complications. Then in 2012 her remaining 60cm of bowel completely packed up. She had multiple fistulas on her abdominal wall due to Crohn’s and was dependant on TPN with complete bowel failure.
Amy was put forward for a bowel and abdominal wall transplant and in January 2013, she became the first female in the UK to be given this amazing gift!
Three weeks after a 20hr transplant Amy left hospital and was doing well, even though she was supposed to be in hospital for 3 months+. Amy still has various complications but she has always set herself goals to push her through, and so she decided to take a CICRA place in the Great North Run 2014. This was a little sooner than she had anticipated taking on such a challenge, but she was determined to run.
Despite being in back in hospital, Amy set up her Justgiving page, to in Amy’s words “raise some much needed cash for the amazing kids and teenagers that fight day in day out. It takes guts to get through a day with ‘crohnie’ guts and as I have borrowed some I’d like to use them and give something back.”
Amy ran the 13 mile Great North Run on Sunday 7th September, and she said “It really was such an amazing feeling crossing that finishing line knowing this time last year I was in ITU and couldn’t manage one step up the stairs without help.”
To date Amy’s Justgiving page (https://www.justgiving.com/Amy-Grime1/) has raised a fantastic £1,768.75 (inc. Gift Aid). We would like to thank Amy for raising funds for CICRA, and we congratulate her on her outstanding achievement.
We think you will agree that Amy is an inspiration to us all. We wish Amy the best of luck for the future.